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KMID : 0379919880130010001
Journal of The Korea Socity of Health Informatics and Statistics
1988 Volume.13 No. 1 p.1 ~ p.16
Longitudinal Aspects of Korea Dialysis and Transplant Registry Data


Abstract
In 1981 the Korean Society of Nephrology has decided to initiate Korea Dialysis and Renal Transplant Registry and thus adopted from 1985, in collecting patient data, the registry questionnaire used in Australia and Now Zealand. This report summarizes the aspects of Korea Dialysis and Renal Transplant Registry of 1985 and of 1986. Registry inevitably involves multiclinic data collection. Practical problems followed in such collaborative study were foreseen by the Korea Society of Nephrology to insure a successful registry. An organization, comprised of a chairman and a coordinating center who would monitor/supervise data collection and its analysis, and exercise an adequate control over many clinics, has not been created though it is needed. The registry data are examined in the light of completeness, reliability and adequacy of its questionnaire items. Considerations relevant to evaluation of the registry are: the coding systems used for the registry; the completeness and accuracy of the data; errors and its extent; and new registrations, deletions and alterations made to the file of registrations. Several of the errors identified are of considerable importance in the data analyses. The development experiences of dialysis and renal transplant registries of the United States, Australia and New Zealand are briefly described as models of registries of a long history.
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